Life with a Rare Disorder

Multiple Endocrine Neoplasia Type 2A (MEN2A)

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Category: Tips for AI Patients

Tip #6 for AI Patients: If It’s Broke, Fix It!

Do not settle for a crappy quality of life because you’re afraid to speak up. I am a “pleaser” by nature and it works against me sometimes. Clear communication with your physician is always beneficial to your care plan.

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Tip #5 for AI Patients: Learn…Carefully

Learn as much as you can about your condition from reputable sources. You live with it every day, so it is important to read the manual!

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Tip #4 for AI Patients: Stay Medicated

Bring your meds and water with you whenever possible. Keep track of taking meds using these strategies.

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Tip #3 for AI Patients: Create a Safety Net

Make sure you can get help if you ever need it.  Find out what the local protocols are in your area for paramedics.

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Tip #2 for AI Patients: Carry an Emergency Injection Kit

Always be sure to carry an emergency injection kit with you at all times. You never know when you may need it.

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Tip #1 for AI Patients: Wear a Medical Alert Bracelet

There are lots of options for medical alert identification. Here are the most important things to think about.

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Disclaimer

This blog documents my personal experiences living with MEN2A, medullary thyroid cancer, and adrenal insufficiency caused by a bilateral adrenalectomy. I am not a doctor and am not dispensing medical advice. Consult with your physician before making any changes to your care or medications.

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Categories

  • Adrenal Insufficiency (10)
  • Cortisol Pump (1)
  • Medullary Thyroid Cancer (4)
  • Multiple Endocrine Neoplasia Type 2A (7)
  • Tips for AI Patients (6)

Posts

  • Generic B.S.: Generic Drug Drama
  • Tip #6 for AI Patients: If It’s Broke, Fix It!
  • Tip #5 for AI Patients: Learn…Carefully
  • Tip #4 for AI Patients: Stay Medicated
  • Tip #3 for AI Patients: Create a Safety Net
  • Tip #2 for AI Patients: Carry an Emergency Injection Kit
  • Tip #1 for AI Patients: Wear a Medical Alert Bracelet
  • Manual Transmission: The Cortisol Pump Game-Changer
  • Taking Shots: 4 Things I Want People Without AI to Know
  • I Heart Houston: My First Trip to MD Anderson
  • Round Four: Medullary Thyroid Cancer Spread
  • The Talk: Telling My Kid
  • The Good Cancer: Medullary Thyroid Cancer
  • The Year of the Mutant

Comments

  • babishopdx on Manual Transmission: The Cortisol Pump Game-Changer
  • Kari M. Dahl on The Year of the Mutant
  • loribgibson on The Year of the Mutant
  • sczpetrie on I Heart Houston: My First Trip to MD Anderson
  • Kari M. Dahl on Round Four: Medullary Thyroid Cancer Spread
  • Caitlin Nungesser on Round Four: Medullary Thyroid Cancer Spread
  • Kari M. Dahl on Round Four: Medullary Thyroid Cancer Spread
  • Kristen Foster on Round Four: Medullary Thyroid Cancer Spread
  • Kari M. Dahl on The Good Cancer: Medullary Thyroid Cancer
  • Kari M. Dahl on The Talk: Telling My Kid
  • apainintashasneck on The Talk: Telling My Kid
  • Kari M. Dahl on The Talk: Telling My Kid
  • apainintashasneck on The Talk: Telling My Kid
  • Donna LeBeau on The Year of the Mutant
  • Kari M. Dahl on The Talk: Telling My Kid

Disclaimer

This blog documents my personal experiences living with MEN2A, medullary thyroid cancer, and adrenal insufficiency caused by a bilateral adrenalectomy. I am not a doctor and am not dispensing medical advice. Consult with your physician before making any changes to your care or medications.

Subscribe

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 14 other subscribers

Categories

  • Adrenal Insufficiency (10)
  • Cortisol Pump (1)
  • Medullary Thyroid Cancer (4)
  • Multiple Endocrine Neoplasia Type 2A (7)
  • Tips for AI Patients (6)

 

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